- We received the following letter on Saturday,
10-25-97. It's powerful message reaches out from the darkest corners of
social neglect and mass denial. AIDS is not a statistic; it is a disease
with real people suffering real pain.
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- ******
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- Dr. I have had been diagnosed with HIV
since 7-84, by receiving a blood transfusion. I have been in many clinical
trials, experimental drugs and Holistic med. I'm a 34 yr. old female.
The virus acts different in male/female patients . Over the years, I have
tried these drugs, AZT, DDC, DDI, Zovirax, Dapsone.
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- I have had major side effects from these
drugs and I have also obtained allergies that I never had before. I am
now on the Protease cocktail, Zerit, Invirace, Zovirax. I have not seen
any marked improvement, either T-cells go down or viral load goes up.
I believe that the side effects are more harmful to my body than the disease.
The only opportunistic infections I have had Gastrointestinal, Nueropathy,
and Cervical cancer directly related to HIV. Lymph nodes, dental problems,
skin problems.
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- If the cocktail doesn't show improvement
within 90 days will there be improvement?. I have had memory problems as
well. I have other medical problems prior to my HIV. Legally blind, Chron's
disease, Cataracts and Glaucoma in right eye, Left is a prosthesis. I really
do not know what to do next?.
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- The passed 90 days and even prior to
that my health has gotten worse. I live in a small town that still thinks
AIDS is taboo. There is not much support from the community, or, for that
matter my family. To try and get any help for meds., bills, or transportion
is just about impossible. I do not know if getting off the meds. would
be good for me or staying on them. I don't know what is worse..the treatment
or the Aids?. I would like to know Dr. Savitch's opinion if you could find
out?.
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- My body gets worse every day like a time
bomb waiting to blow. There are many other medical problems that are new
due to Aids swelling of the feet, hands and numbness in my feet, I can't
feel them when I walk or any position for that matter. I recently found
out that I have a vertebrae in my back that is crooked, and that is leaning
to one side other than straight, it is caused from Scoliosis. I trip and
fall more than I did before and, I'm also back to using my quad cane.
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- If you have any information that might
help me please write me back?. I would also like to know the Dr.'s opinion
about what I have written to you . Please tell me where to get his book
the nutcracker and how much it costs? I don't think the bookstores in
my area have many books concerning AIDS. How much would it cost to order
the book? I know you can't diagnosis me through this e-mail but any info
is better than none.
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- Thank you for your show, L. Mullen (PWA)
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- Dear L. Mullen
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- I am speechless after reading your letter.
The courage and strength in your words is something I will not forget.
The human spirit sometimes has a power, and a will, that is beyond human.
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- I am not a Doctor and can't give advice
but will state that Ozone therapy, which you have probably known about
for many years, seems to be very important. It is legal in New York, North
Carolina, Nevada, and Alaska as of the last information we had. Introducing
high levels of oxygen into the body has been shown to help in many different
illnesses.
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- Dr. Cary Savitch's book: "The Nutcracker
Is Already Dancing" can be ordered from: Teague House Press, PO Box
24258, Ventura, CA 93002. The book is listed at $23.95. I would include
$3 shipping.
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- Please write to Dr. Savitch in care of
Teague House. They should direct your letter to him quickly, as he practices
medicine in Ventura.
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- God bless you and give you the continued
strength to move forward. This disease will be stopped someday. Thank
you for being out there and for listening. It matters.
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- Best wishes and thoughts and hopes to
you,
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- Jeff
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- (If you would like to write a note to
Ms. Mullin, we will be happy to forward it to her. Mail to: eotl@west.net.)
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