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CJD Widower Gives A
Human View Of CJD Agony

From Patricia Doyle, PhD

Hello Jeff - The first thing I want to point out is the fact that Joyce Parlour, who died of CJD, had not eaten red meat for years. She did, however, eat chicken and pork. CJD as with Mad Cow can, in some cases, have an unusually long incubation period in years. This case might also tell us that, maybe pork and chicken, are not good substitues for beef...we do know they are not being tested for mad cow disease and are slaughtered too quickly to show symptoms.  Another question: did Mrs. Parlour ever go to a dentist
for treatment with invasive, reusable 'sterilized' instruments?  CJD has many risk factors.
Mr. Parlour, husband of the victim, does give a good view of the human side of this monsterous killer that robs people of their very identity and memory. It leaves nothing in return except the horrendous hole in a person's brain. This is the horror known as 'sporadic' CJD.
There have been cases of 'sporadic' CJD in people who hunt deer and ate the deer meat. Deer meat is not red. Simply because a person has not eaten red meat does not mean prion disease won't attack. We know that prions are found in, not only the central nervous system of deer, but also in the meat.
Mrs Parlour died of pneumonia caused by 'sporadic' CJD. One must wonder how many such cases have pneumonia are listed as cause of death with no mention of CJD. How many sCJD and other prion disease cases are mistakenly or deliberately identified as Alzheimer's Disease?
What are the real numbers of cases of sCJD and other forms of mad cow in humans?
CJD Widower Tells Of Torment
A "perfect mother and wife" died of Creutzfeldt-Jakob Disease (CJD) despite not eating red meat for years, an inquest has been told.
Grandmother Joyce Parlour, 74, of Chelmsford, lost the feeling in her arm at the start of the year and within three months she had died.  Her grieving husband of 56 years, John Parlour, said the cause of her death was a "mystery" and more research needed to be carried out into the devastating brain disease.
Speaking outside her inquest at County Hall in Chelmsford yesterday the 79-year-old widower said: "She was the perfect mother and wife, this thing came right out of the blue, it's a mystery how she caught it."  He said his wife, a mother-of-two and grandmother of one, had not eaten red meat for many years after suffering digestive problems.
Mr Parlour, a retired heating engineer and war veteran, said: "I was so surprised because she hadn't eaten red meat for years, she was living on chicken and pork for quite a number of years.  "I inquired with our own doctor about whether she had had a blood transfusion in the past 30 years and she hadn't.
"If she caught it through eating meat she's not going to be the only person that has eaten that piece of meat, there will be other people.  I think the risks were played down for too many years, it needs to be investigated thoroughly."
The disease, which causes small spongy pockets in the brain, is said to be growing more common in Britain due to more accurate diagnosis and the emergence of a new form - variant CJD, which is linked to BSE or mad cow disease in cattle.
Mrs Parlour died of pneumonia caused by sporadic CJD at Broomfield Hospital in Chelmsford on March 11 this year just three months after noticing something was not quite right.
Sporadic CJD is the most common form of the disease and the symptoms include memory problems, mood changes, clumsiness, feeling muddled, slurred speech, problems walking and jerky movements. The cause of sporadic CJD is unknown.
Mr Parlour said: "Around Christmas she lost the feeling in her left hand, my daughter was going to a private hospital for physiotherapy and she arranged for someone there to see Joyce because we thought it might be a trapped nerve.  "She went there and was told it wasn't a trapped nerve and the best thing was to go to hospital.
"She went to Broomfield Hospital in Chelmsford and stayed there for a week or more, they couldn't find anything wrong with her.
"She came home for a while but she was having problems walking and suffered violent jerks and fell over and hit the back of her head.
"She felt it was too much for me to cope with and insisted she went back to hospital. The next thing I knew they had put her in intensive care and had a specialist come down from Edinburgh and they mentioned CJD.  They said they were 99 per cent sure it was CJD but they could only be absolutely sure if they carried out a post mortem when she died. She didn't last three months.  We never told her what they said, we thought it was for the best."
Tests at Kings Colleges Hospital confirmed that Mrs Parlour did have the rare Creutzfeldt-Jakob Disease.
Mr Parlour said he and his two daughters Christina, 54, and Linda, 44 and a grand-daughter Victoria, 34, were devastated by the news.
At her inquest yesterday assistant deputy coroner, Chinyere Inyama (CORR), recorded a verdict of natural causes.
Paying tribute to his wife a sobbing Mr Parlour, said: "She was very fussy, everything she did had to be just so.  She knitted toys for the children's ward and took them up there every Christmas. She always had to be doing something, even if she sat down to watch television she would be knitting at the same time.  She had learned how to use the computer to make her own cards, she was quite an active woman.
"It's a lonely old life now, we spent a lot of time together, I loved her so much."
Patricia A. Doyle DVM, PhD
Bus Admin, Tropical Agricultural Economics
Univ of West Indies
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Zhan le Devlesa tai sastimasa
Go with God and in Good Health



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